Our plagiocephaly journey: Reflections on the helmet

Plagiocephaly helmet reflectionsWhen we first started the plagiocephaly helmet it was difficult for us. I tried to decorate it and make it feel more ‘girly’ but honestly, it was not something I really wanted. Now that it’s been one month since the munchkin graduated from her plagiocephaly helmet it’s much easier to look back on and say it was worth it. This past month has given me plenty of time to reflect on how our plagiocephaly went. Here are my thoughts:

  1. The helmet is only half of what you need. The other half is a really good orthopedic specialist who understands plagiocephaly and how to fix a baby’s flat head. There is a limited amount of time for this to occur, so someone who wants to ‘wait and see’ may wait too long and then there won’t be anything you can do to fix it. We were very lucky to have a wonderful doctor who explained everything to us and what he was doing to make sure the helmet was fitted properly and her head grew appropriately.
  2. It was worth it. Yes, the 5 hour round trip drives for a thirty minute appointment seems outrageous, but I feel like it’s better to spend the time now rather than have a child who may never have a round head. Our specialist even joked that the helmet cost more than his first car (mine too!) but we do crazy things for our children.
  3. It takes commitment. We kept the helmet on for about 22 out of every 24 hours. It’s supposed to be on for 23 hours every day, but 22 hours fit our schedule better. I do not think it would have worked with much less than what we did. We occasionally took the helmet off for bathing, photos, and eating (who wants to clean spaghetti out of a helmet? Not me!), but other than that it stayed on. If you’re not going to be committed to keeping it on all the time don’t bother.
  4. I do not miss taking it off and putting it back on. I was terrible at this. My husband was much better at it than me. I’m guessing it feels similar to someone putting a motorcycle helmet on you. Not terrible, but certainly not super comfortable. It did not help that it made me feel super guilty all the time.
  5. It brought my husband and myself closer together. It was one of the first major decisions we made regarding our daughter and we supported each other in doing it. I cannot imagine doing this without my rock next to me. The fact that we both agreed upon this decision and lived through it together is something I am so glad to have done, even if it wasn’t the funnest at times.
  6. I will do anything for my daughter. She has me wrapped around her little finger. She smiles at me and I love it. She needs a helmet and I’ll buy it. I know I’ll tell her no a lot in the future, but this was something I was more than happy to say yes to. I mean, look at that face!

Madison without her plagiocephaly helmet. After treatment was complete.

 

 

One thought on “Our plagiocephaly journey: Reflections on the helmet

  1. Pingback: Ten months! Time is flying! | Carol's Catalog

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