Part Three: Plagiocephaly journey, the helmet

I’m cataloging our experience with plagiocephaly and having our baby wear a helmet. You can read more in the first two parts: Before the helmet & The fitting.

This week we officially obtained Maddie’s helmet. It’s expensive because it’s all out of pocket, but we keep telling ourselves it will be worth it in the end. When we ordered it we were given the options of having it with a design or solid color. We chose solid pink so we could accessorize it for her. The patterns they had were not our style at all.

My first attempt at a photo in her new helmet

My first attempt at a photo in her new helmet

Madison did not seem to mind having the helmet fitted, but she did struggle with the added weight on her neck. She continually bent over every time they put it on her, which made us feel guilty. Again, we keep telling ourselves it’s worth it in the end.

We were given a ‘breaking in’ schedule that slowly preps her for wearing it 23 out of 24 hours a day. Day one is one hour in, one hour out, and she doesn’t need to sleep in it. It builds up to all day, every day including naps and nighttime. Thankfully, they told us how to clean it and it’s pretty easy, only a 50/50 mixture of rubbing alcohol and water spritzed on and dried with a soft cloth. We were told ‘it will smell’ if you do not do this every day. So, we will definitely be keeping up with that. I cannot imagine having a smelly baby helmet.

After the appointment we scheduled a two week follow-up and headed home. Since it was already half way through the day we decided to start the ‘break-in’ schedule the following day. I think we both felt we’d traumatized her enough for one day. She just looks so sad and tired wearing it.

Madison in her plagiocephaly helmet

Madison in her plagiocephaly helmet

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